From Data to Action: A review of all 2018 infant deaths in Northeast Florida

The first complete analysis of all local infant deaths from a year was presented on Thursday, October 31, 2019 at “From Data to Action: A review of all 2018 infant deaths in Northeast Florida.” This special Fetal & Infant Mortality Review project identified key areas of concern and provided recommendations for action.

A mother’s health prior to pregnancy, the social determinants of health, lack of family planning and siloed medical/social services were identified as trends across the 147 infant deaths reviewed. Recommendations included developing a medical one stop shop for all services; utilizing the medical home model; improving access to and engagement and retention in home visiting programs; improving the universal prenatal risk screen rates; implementing evidence-based group health care like CenteringPregnancy, Parenting and the chronic disease model; and engaging all sectors of the community.

Click here for full 2019 Project Impact Report. The full presentation can be found here

The results of the full infant mortality review align with the March of Dimes’ 2019 Prematurity Report Card released in early November. The report card also identified social determinants of health and health care access as issues affecting birth outcomes.

Thank you to the special guests in attendance, Florida Agency for Health Care Administration Secretary Mary Mayhew; Florida Department of Children & Families Assistant Secretary for Child Welfare Patty Medlock; state Rep. Tracie Davis; and Farisha Hamid, legislative aide for state Sen. Audrey Gibson.

The agenda included:

  • Welcome, Melanie Patz, vice president, community investment and impact, Baptist Health
  • Impetus and Purpose of the Review, Faye Johnson, CEO, Northeast Florida Healthy Start Coalition
  • Approach: Perinatal Periods of Risk Analysis, Carol Brady, Maternal Advocate
  • Review of Findings, Mark L. Hudak, M.D., chair, department of pediatrics; chief, division of neonatology, University of Florida College of Medicine – Jacksonville; associate medical director of the Neonatal Intensive Care Unit at Wolfson Children’s Hospital; associate dean for managed care, UF Health Jacksonville
  • Case Studies from the Findings, Tracy Claveau, FIMR Coordinator/Consultant, Claveau Consulting
  • Moving from Data to Action, Faye Johnson, CEO, Northeast Florida Healthy Start Coalition
  • Closing Remarks, Darnell Smith, North Florida market president, Florida Blue

Since 1995, the Coalition has implemented a Fetal & Infant Mortality Review project to reduce infant mortality by gathering and reviewing detailed information to gain a better understanding of fetal and infant deaths. The project examines cases with the worst outcomes to identify gaps in maternal and infant services and to promote future improvements. Last October, Baptist Health/Wolfson Children’s Hospital, UF Health Jacksonville and Florida Blue announced funding for a full review of why babies are dying before their first birthday in Baker, Clay, Duval, Nassau and St. Johns counties.

All 147 infant deaths from 2018 were reviewed. The detailed analysis included abstraction of medical and vital statistics records for all infant deaths; analysis of fetal and infant deaths (overall and by race) using the Perinatal Periods of Risk to create a population-based framework and identify disparities in birth outcomes; and integration of information abstracted from patient records into PPOR analysis to determine the impact of specific medical and social risks, gaps and opportunities for intervention. The review utilized Doctor of Nursing Practice students from Jacksonville University to assist with data abstraction and maternal interviews.